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Saturday, June 8, 2013

International partners describe global alliance to enable secure sharing of genomic and clinical data

By Broad Communications, June 4th, 2013
Over 70 leading health care, research, and disease advocacy organizations that together involve colleagues in over 40 countries have taken the first steps to form an international alliance dedicated to enabling secure sharing of genomic and clinical data. The cost of genome sequencing has fallen one-million fold, and more and more people are choosing to make their genetic and clinical data available for research, clinical, and personal use. However, interpreting these data requires an evidence base for biomedicine that is larger than any one party alone can develop, and that adheres to the highest standards of ethics and privacy. These organizations recognize that the public interest will be best served if we work together to develop and promulgate standards (both technical and regulatory) that make it possible to share and interpret this wealth of information in a manner that is both effective and responsible.

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