Draft NIH Genomic Data Sharing Policy Request for Public Comments

[Federal Register Volume 78, Number 183 (Friday, September 20, 2013)]
[Notices]
[Pages 57860-57865]
From the Federal Register Online via the Government Printing Office [www.gpo.gov]
[FR Doc No: 2013-22941]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

National Institutes of Health


Draft NIH Genomic Data Sharing Policy Request for Public Comments

SUMMARY: The National Institutes of Health (NIH) is seeking public 
comments on the draft Genomic Data Sharing (GDS) Policy that promotes 
sharing, for research purposes, of large-scale human and nonhuman 
genomic \1\ data generated from NIH-supported and NIH-conducted 
research.

DATES: To ensure that your comments will be considered, please submit 
your response to this Request for Comments no later than 60 days after 
publication of this notice.

ADDRESSES: Submit comments by any of the following methods:
     Online: http://gds.nih.gov/survey.aspx.
     Fax: 301-496-9839.
     Mail/Hand delivery/Courier (for paper, disk, or CD-ROM 
submissions) to: Genomic Data Sharing Policy Team, Office of Science 
Policy, National Institutes of Health, 6705 Rockledge Drive, Suite 750, 
Bethesda, MD 20892.

FOR FURTHER INFORMATION CONTACT: Genomic Data Sharing Policy Team, 
Office of Science Policy, National Institutes of Health, 6705 Rockledge 
Drive, Suite 750, Bethesda, MD 20892, 301-496-9838, GDS@mail.nih.gov.

SUPPLEMENTARY INFORMATION: 

Background

    The NIH's mission is to seek fundamental knowledge about the nature 
and behavior of living systems and the application of that knowledge to 
enhance health, lengthen life, and reduce illness and disability. The 
draft GDS Policy supports this mission by promoting the sharing of 
genomic research data, which maximizes the knowledge gained. Not only 
does data sharing allow data generated from one research study to be 

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